This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
I had to explain to Dalan today that mommy was crying because she was so happy. Jayen started talking again today. I can't remember the last time I heard him talking like that. What a great day!!!
I think there are tears in my eyes too. So happy to hear that he was talking!!!! LOVE you and want to send a great big hug to you all. - LINDY
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