Met with Dr. Frost again today. I can't believe it has been 6 months since we were here last. Even worse I can't believe it has only been 4 months since his last seizure.
We were really hoping to get off the Topamax since it is causing the acidosis and not allowing him to sweat. We decided it would be best to take this really slow. We are coming down on the Topamax but not completely off. There will be a two week decrease schedule we have to follow then call back and let them know how things are going. It was a great visit, but wish we had a few more answers. I guess I need to find a few more questions first!
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