I'm a big brother!

Brilyn Nicole Hochstein was born today at 8:17. She was 6 lbs. 6 oz and 19 inches long. She is the perfect addition to our family.

Jayen loves being a big brother!

Are you f-ing kidding me?

I can't believe on Monday we were one year seizure free and now we have these. Jayen came into our bedroom to wake us up, I'm so glad Matt was home to see it with me, he was laying beside Matt then suddenly started staring off and couldn't control his arms. Matt tried talking to him and asking Jayen to complete simple tasks, like high five. Jayen understood that someone was talking to him and would turn towards Matt's voice, but was unable to complete the task. It was very strange, but we both knew instantly that we were dealing with seizures again. I worry that since it is such a blank stare that others will not be able to recognize that they are seizures. They last so long too. We are supposed to give Jayen diastat after 3 minutes, but I will try to avoid it at all cost. What is going on. I'm so heartbroken and can't believe we have to go through this again. Jayen is just started to make more vocal sounds too. I pray that this doesn't set him back. I pray that we can stop these quickly. I pray that this horrible disease doesn't affect him for the rest of his life. I pray for a cure!

Go away seizures and NEVER come back!

Aquatic therapy

Jayen started aquatic therapy today. Mommy was so excited for him. I really thought he was going to love it, but I was so wrong. Jayen screamed the entire time. I had to entice him into the pool by kicking a boogie board with Lightning McQueen on it.

 

1 YEAR SEIZURE FREE

HOLY MOLY! We have never been here before. We have made it to one year!


We light a lantern

HOLY MOLY ONE YEAR SEIZURE FREE

How did we get here? WOW! Mommy didn't write it on the calendar because she didn't want to jinx it. We have never been here before. We don't know what to do. Tonight mommy and daddy have a big surprise for me. We are letting a lantern fly away. Mommy said we are letting it go because we are letting my seizure go with it. Hope they go away and never come back!