About Me

On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.

Wednesday, December 12, 2012

RED LIGHT!

What a horrible horrible horrible (and I might add no good, very bad) night. Jayen was up ALL night long. He is on 3mg of melatonin (an adults dose) and still isn't sleeping through the night. So, of course, what happens this morning? A great big ol' seizure.  It had been two weeks since the last one and I really thought we were on a better path. Mommy is so exhausted. Physically, emotionally, mentally, and whatever else you can think of. This has to stop! Jayen's seizures and all his medical care is killing me. Then on top of it I have to jump through hoops for the doctors because of Brilyn's weight. I just have small babies. And to top it all, I have to see an edocrinologist on Friday for my thyroid. I'm scared shitless and really just need to leave my life for a little bit and come back refreshed.

No comments:

Post a Comment