About Me

On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.

Monday, April 21, 2014

Life sentence?

Four years ago today Jayen was given a life sentence with epilepsy. That catastrophic diagnosis has changed our lives. Infantile spasms may be gone but the seizures aren't. We were even blessed with this one today. I'm so mad and angry with everything he has to go through. He even had large portions of his brain removed and still these damn things won't go away.


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