This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Anyone got any good ideas of how to explain to a two year old that you have to hurt his brother in order to make him better? What a good big brother he is!
We tell Hailey's sisters that it is just medicine to make Hailey better... just like you don't like taking medicine neither does Hailey. Luckliy Hailey has finally gotten to the point that she doesn't even cry when she gets her injections everynight... It will get easier :)
We tell Hailey's sisters that it is just medicine to make Hailey better... just like you don't like taking medicine neither does Hailey. Luckliy Hailey has finally gotten to the point that she doesn't even cry when she gets her injections everynight... It will get easier :)
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