This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Everytime we go to the hospital Dalan throws money in the water fall and makes a wish for his brother. "Make Jayen all better!" he says, then throws the coin as hard as he can. He is such a good protector. I don't think he understands everything that is going on, but he tries his best to make Jayen feel better.
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