This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
About Me
- Jayen Hochstein
- On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Wednesday, May 26, 2010
Jayen has been seizure free for 12 days! I wasn't posting this information for a while as I was kind of superstitious. I hope this doesn't make him have another. I did knock on wood! Everyday is a step closer to surviving this crazy diagnosis. I am so thankful for all the support we have received. Jayen will start early intervention next week. I'll let you know how it goes.
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