This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
About Me
- Jayen Hochstein
- On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Friday, June 4, 2010
Can this kid catch a break?
We went in to the doctor today for one of our routine blood pressure checks. Blood pressure was good, weight was high :)! I asked the doctor to come in and look at this "bruise" above his belly button. Matt and I noticed it the other day and I was asking him if he knew what a hernia was. Mother's intuition! Jayen has an umbilical hernia. I really don't know why he can't catch a break. We had plans for this weekend again too. Sorry buddy!
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