This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Jayen has been showing a little of his old self. We recently acquired a trampoline from and friend and have been on it almost everyday. Dalan and Jayen both are just on cloud nine when we are jumping on it. They boys love playing together! Jayen is really starting to show more of his personality again. I love that the steroids made him seizure free, but they sure took a lot away from us too. Glad we are almost done!!!
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