This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
About Me
- Jayen Hochstein
- On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Monday, June 7, 2010
We had another special education intervention today. Our new teacher was very nice and worked well with Jayen and Dalan. Dalan, of course, ALWAYS wants to "help"! We were very thankful for the help we received! She had so many great ideas on how to help develop Jayen's left side. He is currently rolling over (as his only form of transportation right now) from his right but not from his left. We were given strategies to try to encourage him to work and use that side. A few extra days were added to our schedule. We get to see the teacher Wednesday too!!! We look forward to more interventions and the great ideas!
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