This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
About Me
- Jayen Hochstein
- On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Sunday, July 4, 2010
Another trip to the ER
Jayen woke up this morning with a fever of 102. I called the neurology clinic to see what they wanted us to do. I would have given him a bath and Tylenol but knowing that his immune system is so compromised I wanted to make sure everything was ok. The on call doctor wanted us to go to the Emergency room and just have a doctor look at him. They finally decided that he should be ok but they want us to come in tomorrow again to re-check some of his blood levels. What a great start to our fourth of July celebrations! Just hope it is a little virus and he can fight it off without any problems. Keeping our fingers crossed!
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