This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
About Me
- Jayen Hochstein
- On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Friday, July 16, 2010
Hot Air Balloon
We went to Gretna days today. It was kind of a flop. We ended up having everyone come to our house, but had a little fun before we left. We went inside a hot air balloon. They had it on the ground, blown up with fans. It was such a great experience. I couldn't believe how big it was, how pretty it was, and how fun it was. I'm glad I got to experience that with the kids too!
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