This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
About Me
- Jayen Hochstein
- On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Wednesday, July 28, 2010
Working on loving green beans
Mommy has been trying EVERYTHING to get me to eat my food. She thinks that because I get so many medicines orally that I just don't want anything else in my mouth. Our special education teachers suggested just letting Jayen play in it, get it on his fingers, and possibly getting it actually IN his mouth. Well, it looks fun and really messy!
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