This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
About Me
- Jayen Hochstein
- On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Monday, August 16, 2010
When we went to the doctor the other day, Dr. Toth asked us if we thought our once every other week therapy was enough. I said no and he agreed. He put in a referral for us to see a pediatric therapy center in Papillion. I called today and have our initial consultation on September 1st. I'm so excited!! I know he is delayed, but hopefully with lots of intervention he will soon catch up!
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