This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Jayen got to experience Vala's pumpkin patch for the first time this year. We believe we have started this as a family tradition now. It was so much fun! Jayen was so alert and alive with all of his surroundings. It was so great to see him interacting with everything! Can't wait to do it again.
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