This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
About Me
- Jayen Hochstein
- On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Thursday, January 27, 2011
We had therapy today and told Mrs. Kristen all about the doctor's appointment yesterday. She agreed that it was kind of crazy to do a feeding evaluation on him. He is eating almost perfect now. She was a little frustrated and was talking about how she needs to meet with the doctors to understand their reasoning. I invited her to come with us when they do Jayen's. So, we scheduled it together. I'm so excited that she will be there. I really trust her and her opinions and am thankful that there is someone there who is knowledgeable about Jayen and will ask appropriate questions. Matt will be gone so it is also one more person who will be able to help me relay everything later!!!
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