We made it to Rapid City and are spending the night at a cabin near the "face mountains". Mount Rushmore was beautiful. The boys seemed to enjoy it. We were able to stay for the lightining ceremony. Jayen didn't make it that long to actually see it, but the rest of us really liked it.
This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
About Me
- Jayen Hochstein
- On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
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