This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
About Me
- Jayen Hochstein
- On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Friday, July 8, 2011
To walk a mile in your shoes...
Met up with a couple of I.S. mommies today. It reminded me so much of all the crap we have been through with Jayen. So sad that there are other's that are going through it but it is nice to not always feel alone. Wishing her and her family strength and endurance. Terianne, you and baby Maggie are in our prayers!
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment