This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
About Me
- Jayen Hochstein
- On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Monday, October 3, 2011
Just what I wanted
I was supposed to call the doctor on Wednesday but things have kind of gotten away from me. When I finally got to it today, I got the greatest news! Jayen has been doing so well on the decrease of Topamax and the increase of Lamictal that the doctor is ok with us coming completely off the Topamax!!! We will do this very slowly, one pill a week. It will take us 4 weeks but it will be so worth it. I am so excited but so nervous at the same time. Anytime we change meds we are at an increase for seizures. Praying for good results!
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What a cutie! Love his hat!
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