This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
About Me
- Jayen Hochstein
- On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Thursday, September 20, 2012
increase
Jayen had another seizure today. Second time giving Diastat. I HATE THAT STUFF! I don't think Jayen really knows what is going on when he has a seizure, but he grimaces and whines when we give it to him. I called Minnesota and they said to increase the Vimpat to twice a day. Hope this helps.
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