This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
About Me
- Jayen Hochstein
- On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Saturday, January 5, 2013
After the holidays
We have called Dr. Frost a few times the past couple of weeks, but were told each time that we would make adjustments "after the holidays". Well it is now after the holidays and I am not hearing anything back. Jayen had a seizure on Tuesday. I called on Wednesday, Thursday, and was told I would get a call back after the nurse talked to the doctor, still haven't heard anything. Guess I'll call again on Monday.
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