This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
About Me
- Jayen Hochstein
- On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Friday, February 8, 2013
Sleepful nights
Talked to Carol, from Dr. Frost's office, today about the Klonopin addition. Last night was interesting. It took Jayen F.O.R.E.V.E.R. to fall asleep (bedtime at 8 but didn't fall asleep until midnight) but then slept through the night. I repeat, he slept through the night!!!! I would have thrown a party, but Brilyn decided it was her night to not sleep so I was still awake most of the night. Carol and I agreed that doing Melatonin to help him fall asleep and Klonopin to keep him asleep will hopefully be a great combination. We will try it this weekend and see how things go. Wish us many sleepful nights!
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