This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
About Me
- Jayen Hochstein
- On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Saturday, April 6, 2013
GO BIG RED and Go away seizures!
Woke up this morning at the hotel to Jayen having a seizure.We were in Lincoln to watch the Husker Red and White Game. I was so scared we were going to have to call the ambulance to the hotel. Thankfully it was only about 5-6 minutes long so no second diastat or ambulance was required. What are we going to do? I just want him to have a normal life. I want to not wake up and stare at him without blinking just to watch and make sure that he isn't going to have another seizure.
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