This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
About Me
- Jayen Hochstein
- On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Sunday, April 21, 2013
Three dreadful years
Three years ago today we learned our son's fate. Every day for three years my heart has been breaking. We are still left with so many unknowns. Infantile Spasms will never have my son, my son had infantile spasms. Stay strong Jayen Hochstein. Some day we will beat these seizures!
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