This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
About Me
- Jayen Hochstein
- On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Wednesday, June 12, 2013
waiting, waiting, waiting...
Mommy just told daddy yesterday that if Jayen didn't have a seizure before we go they go on vacation she would probably worry about it the whole time! Well, I guess I can worry less. Jayen had another seizure this morning. Waiting to hear back from Dr. Frost's office about what they would like to do.
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