We had a great day attempting to fish with our friends Nikki and Brecon. I was pretty proud of the two mommies for doing this with no help. We even used stink bait. Thanks Nikki, we won't be doing that again! The older boys had free range of the pond and kind of wondered off so Jayen was stuck with the girls. After getting his "hook" stuck on every piece of seaweed possible, I finally took it off and just let him pretend to cast. After Jayen had his fill, we picked up our stuff and went to join the big boys. We didn't catch anything and ended up loosing a couple things including Brilyn's new fishing pole. What a day!!! Just as we were packing up and getting ready to drive off, Brecon ran up to us and made us come see what he caught. A nice one!!!
We went back to the pond with daddy that night and we were able to retrieve Brilyn's pole!
This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
About Me
- Jayen Hochstein
- On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Friday, July 26, 2013
Saturday, July 20, 2013
B B B Boat
We have been lucky enough to have a weekend free to be able to enjoy our boat! The kids love taking it out and even getting the opportunity to "drive". To our amazement, Dalan wanted to go on the tube. Daddy kept asking him if he was sure. I hit him and said stop asking or he won't do it.
Wish we could have gotten Jayen out there too. Might have to wait a few more years!!!!
Wish we could have gotten Jayen out there too. Might have to wait a few more years!!!!
Wednesday, July 17, 2013
We are all learning sign language
I have been wanting to do this for months and finally found someone to help me. Every Sunday the kids go to to Children's Literature. There is an opening song that is sung everytime and I wished I could sign it for Jayen. Well now I know how!!!!
Come and join the circle,
Come and take my hand.
Come and join the circle,
Come and be my friend.
Gather round and see
what the world can be.
Come and join the circle,
Come and share God's word with me.
Saturday, July 13, 2013
Railroad Days
We have been wanting to do railroad days since we have kids big enough to say "Choo Choo"! So glad we finally were able to do it. I had the best time ever, pretty sure everyone else did too.
You can see Jayen's excitement when he got to ride the minature train. He had a smile that stretched from ear to ear.
We all got to ride on a little bigger version. I love seeing their smiles and excitement.
Kenefick Park
We always see these trains on the hill when we come back from grandma and grandpa's house, but have never stopped to see them. They were so HUGE! I didn't realize how big trains really are.
The boys were even excited to ride on a BUS! WHOOOOOO. Glad you like it boys. You might be riding a few more of those soon!
We even liked the trolley!
Friday, July 12, 2013
I 80 speedway
We were able to score free tickets to the races two weekends in a row. We saw Lightning McQueen, Mater, Chick Hicks, and Doc Hudson. Last Friday they had kid box car races, Dalan decorated a box and ran his little heart out to try and win the race. This Friday though they had free rides in the cars too. The boys were so excited. What a great weekend. Tomorrow Railroad Days!!!
Saturday, July 6, 2013
Saturday morning tradition
Apparently there is a tradition in my house that has been going on for centuries (ok, at least a year) that I was recently privileged to. Every morning Jayen requests a peanut butter and bread sandwich. He isn't a fan of cereal and only occasionally will deviate and have a toaster strudel. BUT when it comes to the milk in the bottom of Dad's cereal bowl, it must have his name on it. Apparently the two of them have a tradition, dad eats the cereal and Jayen get the milk and cereal bits. What a cute tradition!!!
Monday, July 1, 2013
Pee Pee in the potty! Pee pee in the potty!
MY BABY BOY JUST WENT POTTY IN THE TOILET!!!!! I am jumping up and down screaming/yelling. He got candy, balloons, claps, high fives.... I didn't think he would ever be potty trained. There is hope yet!
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