This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
About Me
- Jayen Hochstein
- On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Friday, September 13, 2013
No call back
I didn't hear back from Dr. Frost's office on Thursday, so all day Friday I was very short with people on the phone. I even yelled at my mom and told her we couldn't talk because I was waiting for the doctor to call. She was teasing me and immediately called back after we hung up the phone. Gotta love her! Right?!?! I took my phone with me and went to work out. I had the music down low and kept looking at my phone to make sure I didn't miss this LONG AWAITED for call. When I returned home Matt and the kids were gone but all the vehicles were still here. I searched the house and still couldn't find them, so I called Matt. Apparently the EXACT same time I was calling him, Minnesota was calling me. It didn't even ring. When I hung up the phone I noticed I had a voicemail. Carol stated she would try me again in just a little bit. I waited and waited and waited. An hour passed and I knew she wasn't calling me back. I ended up calling the after hours doctor to see if they could get a hold of her. This was ridiculous. I knew it was Friday and she wouldn't call me back over the weekend either. What do we have to do to get a doctor's office to call back? This mommy is feeling frustrated! Phone bombing the office on Monday!
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