This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
About Me
- Jayen Hochstein
- On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Monday, September 16, 2013
Speaking engagment
I was just asked to speak to a Kiwanis club in Wayne, Nebraska. I feel honored but so increadibly nervous. I have to see if it will all work into our schedule. They are looking for ways to help families of special needs children on a bigger platform. Individual requests for assistance are hard for a small organization, so they are looking for ideas to help more children, more parents, and more families. After talking with the president of the club, I think I have a few ideas. This could be fun!
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