This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
About Me
- Jayen Hochstein
- On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Sunday, November 24, 2013
A different kind of play
We were invited to a friend's house today for a party. It was so nice to get out of the house and let them play after being in the house with them by myself for over a week. The boys were so excited to see some old friends. They immediately ran off when they saw their friends. But quickly Jayen was being left out. I kept seeing the other kids continually pushing him to the side and telling him not to play with things. He was getting upset with them and acting out. I felt like I couldn't leave them alone. I sat downstairs with the kids and felt a little left out of the adult conversations. Any second I tried to leave Jayen alone, I was approached with another child telling me what Jayen did wrong. I know he is no angel!!!!! I promise I know that, but I felt very discouraged by the other kids including my own. Dalan knew better. He knows how to get Jayen to do things and to play what they are playing. I reminded him that he isn't allowed to disclude Jayen. Jayen didn't seem to notice or care too much, but it really hurt me. I am really starting to notice how he plays and how it is so different than his peers. Will he ever have friends? Will they ever understand HIM? Sad mommy moment # bagillion!
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I think that sometimes too... anytime you want to try with Espen just let me know! I am usually that mom sitting WITH the kids left out of the conversation. But I want no one to be hurt and everyone to be included.
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