This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
About Me
- Jayen Hochstein
- On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Tuesday, November 5, 2013
Waiting game, as always!
After calling the admissions lady in Minnesota to see what I could do to help the process along so we could get a date for the PET scan, I was informed that Jayen will actually be presented at the surgical conference this week. I was a little upset that no one had called me to tell me this information. Now I was supposed to wait for the surgical conference again then figure out what they want to do for testing. Well, I was supposed to get a call around 9 today. As I figured, I left three messages and haven't received any return calls. I'm not good at waiting. I just want to know what is going to happen. What are the options? What is our next step? PLEASE just give this worrying mom a call back!
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