This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
About Me
- Jayen Hochstein
- On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Monday, December 2, 2013
Packing again
Packing our bags for yet another trip to Minnesota. This trip somehow seems very different than past trips. I don't know why I sense something very strange. I can't tell if it is a good sense or bad. I'm so nervous for this procedure. Jayen is scheduled to have a follow-up with Dr. Frost on Wednesday then his PET scan on Thursday. I have the feeling that this is the beginning of a very long road. I don't know why I keep feeling like it is the beginning since we have been on this crazy journey for almost 4 years now. Very nervous mommy! Hope this provides some more answers and less questions.
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