This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
About Me
- Jayen Hochstein
- On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Monday, December 23, 2013
Should we or shouldn't we?
We have been really concerned about starting Jayen on ritalin. It just wasn't anything we wanted our four year old to be on, but we understood why it would be helpful. I think what finally tipped the boat and made us start was thinking about how calm and still he will need to be after surgery. We wanted to try it at home before we sent him out with others. Christmas vacation was the perfect opportunity! We started Jayen on 5 mg today. We'll see how this goes!
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