This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
About Me
- Jayen Hochstein
- On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Monday, December 30, 2013
We have a date!!!!
FEBRUARY 26th, 2014! This is our D-day! We will probably have to go up a few days prior to do a History & Physical and some labs, but this is the day they are scheduled to do surgery. Matt is scheduled to leave us February 14th, so we are working on begging the Air force to keep him here a little longer. Now we just have to start working on a schedule for everyone; who is going where with who and how long!
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