This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
About Me
- Jayen Hochstein
- On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Monday, February 10, 2014
Prayers please!
Ok, prayers are needed. Jayen is going to do a grid simulation here in just a few minutes. He is going to have to practice sitting in his bed with little movement. Yeah freaking right. If he can't tolerate it, then they will have to postpone surgery until he is able to sit still. That will be freaking NEVER. Have these people every met my child?
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