This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
About Me
- Jayen Hochstein
- On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Thursday, April 24, 2014
AGAIN?
I don't know why it happened, but it happened again. This morning Jayen woke up and had another seizure. This was his first morning seizure since surgery. I'm so frustrated! I keep getting the response to wait six months. What is going ot happen to his brain during this 6 months? What do I do for him between now and then? Why does he have to suffer? I'm trying to give this up to God but am really struggling!!!
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