This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
About Me
- Jayen Hochstein
- On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Sunday, June 29, 2014
Back at it
So defeated and devistated. Not sure why we are at this point again, but we are back to seizures lasting 8+ minutes. Jayen had his second eight minute seizure today. The last one was only three days ago and was also 8 minutes. I know we are continuously told to wait until 6 months post surgery, but I just don't see how another two months will really matter. So sad and unsure what is the next step. What is in his future?
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