This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
About Me
- Jayen Hochstein
- On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Sunday, August 3, 2014
Praying, crossing fingers, scared out of my mind
I have been checking the UHC website far too often and still have not seen a referral for Jayen to be admitted tomorrow. I just don't know what to do. Do we take the chance and drive to Minnesota tonight hoping that we can still be admitted tomorrow, or do we just wait until we have written confirmation? I am so torn. Praying we make the right decision, praying the UHC lady had the right information, praying this all works! STRESSED OUT!!!
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