The weather outside tonight matched my emotions inside. We had torrential downpours and tornado watches, so we kept daddy safe at home and wouldn't let him leave until the weather was better. The interstate was under tornado watches until 1:30am so daddy came home after a little date with mommy and took a quick nap. We were able to get home around bedtime and give the kids kisses and hugs.
This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
About Me
- Jayen Hochstein
- On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Tuesday, September 9, 2014
Goodnight and Goodbye
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