This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
About Me
- Jayen Hochstein
- On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Tuesday, September 23, 2014
Maybe next week?
Still waiting on surgical conference decision. Jayen was not presented this week. I put a call in to Carol to see what our next plan is. Jayen has had seizures three times in a week. They are more intense and are scarily close to the 10 minute mark every time. I'll have to continue calling until we get the next plan.
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