This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
About Me
- Jayen Hochstein
- On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Friday, March 6, 2015
Starting a new Medicine
Today we met with Dr. Easter, Jayen's new pediatrician. After talking about our concerns about his behavior and attention we decided to try Jayen on Concerta instead of the Ritalin. We are kind of desperate. Just praying this doesn't change his sleep (or if it does for the better at least)!
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