About Me

On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.

Wednesday, October 28, 2015

Swallow study

Jayen's feeding issues have gotten worse lately, so his feeding therapist suggested getting another swallow study. I remember the last one, but can't remember how long it has been; probably almost 4 or 5 years ago. We had to arrive early for check in, but didn't realize how early they wanted us there. Thankfully I was able to put the movie Frozen on Jayen's IPad to keep them busy. Matt on the other hand, was having a hard time keeping busy.
 

 
When it was finally time to go back, Jayen really wanted nothing to do with it. We let him look around and play in the chair before it was time, but he still wasn't having it. There was a nurse that took Brilyn to play so Matt could stay and help. I'm thankful for both of their help as Jayen just didn't want to cooperate today. We were able to convince him to eventually take a drink and eat a couple bites. He however, would not sit still for the technician to do the live x-ray. We eventually got what we needed.



Jayen does not aspirate when eating, but has an ineffective chew. Well, we kind of knew that already. There really wasn't a whole lot they could suggest that we weren't already trying. He is just so unaware of what is in his mouth and what his mouth is supposed to do with it. We will continue therapy and continue monitoring what he eats.

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