This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
About Me
- Jayen Hochstein
- On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Wednesday, January 27, 2016
Dreams and nightmares
This morning Dalan was having a really hard time. He came into my room in a weeping mess. He had a dream that his dad died. He couldn't believe how real the dream was. It broke my heart that I couldn't get those images out of his head. I quickly grabbed my phone and let him call Matt. I knew he would probably be sleeping, but I thought it was more important that Dalan hear his dad's voice. After talking with dad and some major hugs from mom he was ready to start his day. What a nightmare for him to experience. I pray dad can come home tonight. Being both parents is exhausting.
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