About Me

On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.

Wednesday, July 20, 2016

Preparing to be THAT mom

I've been preparing for Jayen's new school year. I have never had to prepare for Dalan's school year like this. That alone makes me sad. But I've had to email the principal, school psychologist, and new staff asking for a meeting before school starts. I learned that Jayen's paraprofessional will not be coming back for this next school year so the new hire will not know his seizure protocol. How can send him to school on the first day if they are not prepared for him? What about his feeding concerns? Will they be ready to help him eat on the first day of school? These are my biggest concerns, but also wondering will they know him?
I've been working on a portfolio to hand out to each of the teachers, specialists and paras that will be working with him. I want everyone to know what he can do and how to push him further. He's made so much progress and I don't want him to regress at all. I want there to be no excuses! I want to push him further and make this a great year for him!
I shared the portfolio with Jayen's ABA tutors and his therapists at TEAM 4 Kids. I'm hoping they will have some great ideas and advice to add. I hope that this information is helpful and the teachers will use it. I hope that they see this as a tool that will help them and Jayen. I hope that they see this as a mom who cares and wants the best for their son. I hope that they don't see this as THAT mom just coming in guns blazing and ready for a fight. I will fight, but I don't want to. I am tired of fighting. I hope this school year is a new start for Jayen but also a new start for me. I hope that we can all work together as a team. I hope that we can find a way to help Jayen achieve his fullest potential.












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