Where has the time gone? I know everyone says that. I know where the time has gone. I've spent so much of that time sitting in waiting rooms at hospitals and therapy centers, in conference rooms at schools and at our dining room table doing ABA therapy. We've spent so many days, months, and years preparing him for moments like this! I know exactly where the time has gone. But of course, I wish it would slow down too! Every time this little man leaves my sight I am entrusting another adult with his life. Every time he leaves, I pray that the adult will treat him with respect and help him learn and grow so one day I can be miserable because he has finally left the house. I know he is only 6 and I know this is only Kindergarten, but every day and every therapy and every doctor is going to help get him to a place of independence. Every day is a rat race to get him to some therapy, appointment, or social activity. But I know in the end it will all be worth it! I know that some day I will kick my baby out of the nest and his beautiful wings will open and he will fly further than any of us ever thought.
This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.
About Me
- Jayen Hochstein
- On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.
Wednesday, August 3, 2016
Where has time gone?
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