We've started seeing these breakthrough seizures in the afternoon and evenings now. They are so subtle and easily missed. These are what bother me. These are the seizures that I worry about and keep me up at night. It was easy/easiER to care for Jayen when I knew his seizures would occur in the morning. I knew that the second his feet hit the floor in the morning I needed to be near him. I knew I had to hold onto his magnet all morning long. I knew that around 9 he was good to go for the rest of the day and I could breathe a little easier. But now, I can't breathe.
I can't breathe because I don't know where he will be when one strikes. I can't breathe because I don't know who will be with him. I can't breathe because I can't let him out of my sight anymore. His freedom is taken away again. My freedom is taken away again. Our family's freedom is taken away again. I just want to help him break out of this jail we are now in but I can't.
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