About Me

On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.

Thursday, June 3, 2010

It is so hard to be an advocate

It is so hard to be an advocate for your child. When you are at a restaurant and the waiter brings you your food if it is not to your liking do you send it back or do you just sit there and deal with what was brought to you? I had an encounter like that today. Jayen had his first early intervention meeting today. The teacher was a little "uncooked" and I didn't know how to send her back!
After contemplating for a while and taking advice from a friend, I called our services coordinator and asked for some help. I felt awful asking for someone else but knew in the end that I was doing what was best for Jayen. I have to continue to remind myself that it is OK to ruffle feathers if I am doing what is best for him. I am his voice!

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