Letting the balloons go was like letting all the stress and horrible memories go with them. I cried after every one. Whenever the balloon was no longer visible the pain just seemed to go with it! It was such a great feeling, just letting go!


This blog is to share "our crazy journey" dealing with Jayen's Infantile Spasms. Our struggles and triumphs, all in one place for family and friends and anyone else dealing with this catastrophic type of epilepsy.


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