About Me

On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.

Friday, June 25, 2010

We bought 9 balloons and let them go tonight. One for each of the 9 weeks of this horrible drug. I'm so thankful that it made him seizure free (at least so far!!) but it changed him and turned him into something and someone else. We will always love him no matter how he looks or acts. He is our baby and I treasure any moment we have together.
Letting the balloons go was like letting all the stress and horrible memories go with them. I cried after every one. Whenever the balloon was no longer visible the pain just seemed to go with it! It was such a great feeling, just letting go!

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