Daddy left on Sunday for Mississippi. He is attending the NCO academy. Just as before, Jayen decided to have a seizure today. Two days after daddy left. We were seizure free for 9 months. What happened?
After therapy, I took Jayen with me to run a couple errands. I was trying to him out of the car seat when we got really stiff. I wasn't sure what was going on, but I knew it wasn't good. I called neurology and left a message for someone to call me back. Two hours later I still hadn't heard from anyone. I called again and as I was on the phone with a nurse, Jayen had two more seizures. The nurse talked to the doctor and called me back. In the meantime he had another one. I was advised to take him to the emergency room and have them page Dr. Pavkovic. We waited for quite some time to be seen in the ER. After seeing the ER doctor he called Dr. Pavkovic and they decided to send us home with a prescription and to come back for an EEG as previously scheduled. That was in 2 1/2 weeks. They wanted me to take my baby home and wait. We didn't have any other choice but to go home. I no more than pulled into our driveway and started to unbuckle him again and he had another seizure. I called neurology again and said I can't wait. We were told to come back and they would admit Jayen and start him on Depacon. It is an anti seizure medicine that can be given intravenously. That way we wouldn't have to wait for the oral medicines to get into his system.
We started the IV medicine around 10 and at 10:30 Jayen had one more seizure. It was a long and scary night!
No comments:
Post a Comment