About Me

On March 21st, 2010 My daddy left for his last trip away from us. On March 22nd we had to ask him to come home. I had my first seizure that day. One month later I was diagnosed with Infantile Spasms. I have been through a lot in my short life. But I bring so much joy to my mommy and daddy every time I smile.

Friday, September 2, 2011

Med increase

Heard back from Minnesota today. Jayen's bicarb level is pretty low and they would like to increase his sodium citrate by .5 mL to bring us to 5.5 mL. This wouldn't be a big deal, but Jayen HATES this medicine. We order it flavored and make sure we give him a drink immediately after to chase it down. Hope he adjusts well to the changes!

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